Patient stories


Living with FCS

“I knew quite early on what foods to avoid and what I couldn’t eat.”


Living with hATTR amyloidosis

“Dealing with this condition on a day-to-day basis is a challenge.”

Krish’s story

Living with FCS

Krish was diagnosed with familial chylomicronaemia syndrome (FCS) when she was just a few weeks old. Hear her and her mother describe what it was like for Krish to grow up with strict dietary restrictions and how she manages her disease and lifestyle as an adult.

Patrick’s story

Living with hATTR amyloidosis

Patrick’s diagnosis of hereditary transthyretin amyloidosis (hATTR) devastated him, his wife Trish, and his daughter Gaby, but together they are learning to understand and manage his disease and keep their lives as normal as possible.

If you are a patient, family member, or caregiver and would like to share your story with us or participate in our patient support efforts, we look forward to hearing from you and getting to know you.