Cookie policy

Storage and transfer of information

Akcea, or in some cases third-party companies and/or individuals that work with or for us, may store the personally identifiable data collected via this site in an electronic database. Akcea and these third parties may also exchange such data with each other or with you over the Internet or over intranet systems to process the data, send information to you in response to your request, or otherwise carrying out the purposes described above. Akcea will ensure that such data is protected in accordance with the requirements of GDPR. We may also release your personally identifiable data in response to a court order, subpoena, search warrant, or applicable law or regulation. In such circumstances, we will take appropriate measures to ensure that the requester understands the sensitive nature of the personally identifying information that they may receive.


While Akcea makes reasonable efforts to protect the personally identifiable data collected through its website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk.


Children’s Policy

This website is not intended for, or designed to attract, children under the age of 16. As noted above, we do not collect personally identifiable information unless you provided it to us including an individual’s age.


Updating your information

If you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like that information deleted from our records, please notify us at Please note that we reserve the right not to remove or amend information provided to us regarding an adverse drug event or any information that we are otherwise required to retain by law or regulation.


Links to third-party websites

In general, the third-party providers used by us will only collect, use, and disclose your information to the extent necessary to allow them to perform the services they provide to us. Where we require you or recommend you use these third-party service providers, such as payment gateways and other payment transaction processors, we, irrespective of the fact that they have their own privacy policies, are responsible for their use of your information.

Where we just provide access to third-party organisations, we recommend that you read their privacy policies so you can understand the manner in which your personal information will be handled by these providers who are responsible for safeguarding your information.


Privacy Policy updates

Akcea may, at any time, revise this Cookie Policy by updating this posting. Data will be handled in accordance with the policy in effect at the time the data is collected.


For additional information

If you have any questions about the Privacy Policy, the practices of this website, or your dealings with this website, please contact